Let’s talk… ‘Contents Insurance’.

Insurance – the one word to make me groan.  There are many different types – contents, buildings, car, health, life (assurance), critical illness, business, to name but a few.  However, from the stories I have heard over the years and from the limited amount of experiences I have had when I have made claims (for example the massive roll of foil paper which literally fell off the side of a lorry and rolled down a hill into my stationary car) claiming is anything but straight forward.  Why is it that we are forced to go into battle to be compensated for something which is covered by an insurance policy?

I am in the midst of a claim and it’s rather like walking in treacle.  Apart from the frustration of having to repeat the same story of how the damage happened, to many different people, the insurance company seems to be unhappy to settle my claim!  My insurance is with Payment Shield,  a company which has been trading for 25 years and which, according to their website, has excellent reviews! I pay a rather high premium (£66.79 per month, building and contents) but would rather pay a higher premium to an organisation which delivers an excellent service.  I have just discovered that I have been paying a high premium for VERY poor service, which is a shame because I have been with Payment Shield for approximately 14 years. So much for loyalty!

This sorry state of affairs started quite a few months ago now, whilst I was showering in the bath.  I was using a massive tub of hair conditioner, which I had bought from Homesense.  (My favourite store.)  It had a pump dispenser which had somehow turned slightly, preventing the pump from working. I picked it up with wet hands and tried to twist the pump, but it slipped through my hands into the bath – thankfully I managed to dodge it as it fell.  I thought no more of this incident until some time later, when I happened to notice water on the ceiling of the downstairs cloakroom.  I called a plumber, who discovered a crack in the bath, where the bottle had fallen.  I rang the insurance company and was asked to obtain 2 quotations and to email them across, together with some photos. So far, so good.  The person I was speaking to added, we will need detailed quotations… including the size of the room, the cost of the bath, labour, materials, flooring under the bath, the ceiling… the cost of each element needed to be listed.  I thought this was a little odd, but perhaps they were being thorough and trying to stop any fraudulent claims.  So I called the plumber and asked him to come and provide a very detailed quotation and then I spent time – lots of time – trying to find a second plumber to do the same.  I discovered that plumbers aren’t overly keen to spend their valuable time providing a second, very detailed quotation for insurance companies.

Finally I was able to email both quotations and some photographs to the home claims team at RSA Group, who were handling the claim.  During a follow-up call, I was informed that the claim was too high-value for the team and that they needed to pass it on to the loss assessors.  I was then contacted by Cunningham Lindsey who made an appointment for a loss assessor to visit.  He came, looked at the damage and submitted his report.  I was then offered 1/3 of the value of the claim as a ‘cash settlement’. Seriously? What the hell was I supposed to do with that? It made no sense at all and it still doesn’t… why would my insurance company who I have been with for 14 years, and to whom I have been paying a massive monthly premium, offer me 1/3 of the amount of the quotation? Needless to say, I declined the offer.  So they passed it on to another department… where it would be looked at by the ‘full loss adjustment team’.  I then received a text message from Cunningham Linsey (not even a phone call) asking me to call ‘Invisio’ and giving the phone number. I did and was told that they needed to send someone else to examine the damage – I think he was a Buildings Claims Inspector. So he came, looked and assessed the damage last Thursday.  I have to say that both of the aforementioned gentlemen were very courteous.

The challenge I have is that my bathroom suite is coloured. It’s a sort of ‘duck egg’ colour which I rather like.  My tiles are patterned. Both are discontinued.  It is possible to get a replacement bath from a specialist for around £500 (if they can identify the exact colour) but not the tiles.  I would be happy to accept white tiles. I’m not a diva.  However, I do have OCD about ‘matching’ things, particularly colour!  I have said that if it proved too difficult/expensive to replace the bath, I would accept a white suite, providing it was of a comparable quality. I received a phone call today stating that they will only put a white suite in if I make a contribution!!!  In addition, of course, to the policy excess of £200. And yet I’m pretty sure a white suite could be sourced for less than the cost of the replacement bath, which would need to be sourced from a specialist dealer.  To replace the bath the toilet will probably need to be removed.  AND, to cap it all, they will only replace ‘some’ of the tiles, which means that the bathroom would have a mix of white and patterned tiles (which have a grey background).  Quite frankly I am appalled!!!  So my response was for them to replace my duck egg bath with another one the exact same shade.  I also stated that I do not find it acceptable to have a mixture of white tiles and grey patterned tiles. It will look hideous! The ‘new’ grout will stand out against the existing grout.  It makes me think I should have got the cheapest insurance on the market, rather than paying over £800 a year! (Which over 14 years is £11,200 – although in fairness the premium 14 years ago would have been less than I’m currently paying).

Bathroom1

This whole sorry saga has been going on for months! It took quite some time to get 2 quotes to send off, but I finally emailed them about 4 weeks ago.  I was hoping to be able to have the work done by Christmas, ready for my house guests, but this looks less likely every day.

Before publishing this post, I looked at my Payment Shield policy to ascertain who is covering the contents element of my insurance policy. It is Royal & Sun Alliance  so I made a quick phone call to them to double check that they were still covering it. Having passed the security check, I explained that I was unhappy about the service I was receiving over my claim and that I was writing a blog post about it, which I needed to be factually correct.  She wasn’t happy with the service I had received either and said she would log a complaint on my behalf.  So it could be that the actual insurance companies themselves would handle claims far more efficiently without the middlemen… However, on adding the links to this post I have realised that RSA Group is actually Royal & Sun Alliance, which of course was who I emailed the quotations and photos to in the first place… Confusing, isn’t it? Which makes it really easy to understand how confused.com came up with their name!

If you have had a ‘positive’ experience of a ‘contents insurance claim’ please comment below with the name of your insurer. Because once this situation has been resolved I will be looking to change mine!

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Walking Mindfully makes my heart sing. What makes your heart sing?

It has been over 6 months since Mark Pattenden inspired me to #MoveMoreInMarch so I thought it was time to update you.  I pledged to walk 100 miles in March – a goal which I achieved – and I have to say that I haven’t stopped walking since! It has become my favourite Saturday pastime. I walk with my friend Pauline Roberts, who is an amateur photographer, and we walk ‘mindfully’ – often in companionable silence – as we immerse ourselves in the beauty of our surroundings.

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Walking the beautiful Cotswold Canals

When I started walking in March, I ensured I ‘made time’ to walk every day, regardless of the weather and I have to confess that I haven’t done that for a while.  I much prefer to walk at the weekend, where we have slowly increased the distance we walk to a maximum of around 10 miles.  As I mentioned before we do walk ‘mindfully’ so we do not walk with the sole intent of reaching our destination in good time, nor do we engage in non-stop conversation which might absorb our consciousness to the point that we ignore our surroundings… instead we take our time, noticing beautiful things around us such as the shy robins who momentarily flash their red-breasts at us, confirming we are on the right path just as we are beginning to doubt ourselves, flirtatious butterflies who tease us with their colourful wings before folding them in as we try to photograph them, preening swans who sometimes pluck out a feather for us to take home, busy bees who play hide and seek amongst scented flowers blissfully unaware of us observing them, darting dragonflies with wondrous neon colours, ancient trees which reveal their hidden faces to us, babbling brooks which gently polish sparkling stones, blue skies brimming with glorious cloud formations…  and so much more.

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Pauline and I have both chosen to book time off work – a day here and there – to enable us to walk twice a week and we have been blessed with beautiful weather… at least on most of the days we have walked. There have been occasions when we have walked in rain, wind and hail and as the winter approaches, I am sure we will have many more wet-weather walks.  Will this stop us walking? No… but we might need to invest in some waterproof clothing!

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15 minutes after the heavens opened on us, the visibility started to clear

I was curious to find out how many miles I had walked over the last six months.  I felt it would fall far short of the 100 miles which I managed in March.  I am fortunate in that I have a Fit-bit which helpfully produces a weekly summary, so I transferred this information onto a spreadsheet and was surprised and delighted to discover that in 6 months (1st March to 31st August) I had walked 580 miles, which is not far short of 100 miles a month. Whilst that may not sound like much to the ‘more active’ readers of this blog post, it is a huge improvement on the amount of walking I had achieved previously.  My fitness level has definitely improved – I am actually able to walk and talk now, if I choose to – and although I have not lost any weight, my shape has definitely changed.

I have a lot to thank Mark Pattenden for.  We have been friends on social media for some years now and as I mentioned previously, it was Mark’s inspirational Facebook posts which motivated me to move more and I have seen many beautiful things over the last six months which have made my heart sing. 

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Spot the angel and the sniper…

In fact, I have started uploading some of the film clips I have taken during my walks to YouTube so that I can replay them and embrace the feel-good factor that they induce.   Mark and I are both volunteer fundraisers and in the past we have both (independently) created fundraising initiatives for several charities. Mark inspires people of all abilities and a few months ago I nominated him for the Prime Minister’s Points of Light Award, for his voluntary work.  I was delighted when he was recently presented with the 754th Points of Light Award by the CEO of Archery GB – oh, have I mentioned that Mark is aiming to represent GB in Archery, at the 2020 Paralympics in Tokyo? As with all volunteer fundraisers, Mark has dedicated a huge chunk of his life to helping charities – now Mark is looking for support himself.  His goal is to raise enough funding to ensure he can continue training 6 days a week to fulfill his Paralympic dream.  I have donated to his crowdfunding page – I hope you might be inspired enough to do the same.

In the meantime I will continue with my weekend walks and brace myself for the colder weather.  I might just have to invest in a waterproof camera, unless someone knows how to take photos/videos with an iPhone in the rain WITHOUT ruining the phone?  Please comment below if you have any top tips.  

I believe it’s really important to do something in life which makes your heart sing.  It’s a key factor in self-care, which has been found to decrease stress, increase energy, improve well-being and evoke feelings of happiness.  

What do you do that makes your heart sing?

#MoveMoreInMarch Is this pledge changing my mentality? Already?

Since starting my pledge to #MoveMoreInMarch, I had managed to walk 35.11 miles by the end of Thursday 9th March – an average of 3.9 miles a day – so I was well on track to achieving my pledged 100 miles (an average of 3.23 miles a day).

However, I woke up on Friday feeling overwhelmingly tired. It happens sometimes.  I saw clients in the morning, but by lunchtime my energy hadn’t returned.  I worked through the afternoon, hoping that the exhaustion would pass – it didn’t.  By the time I went to bed, I had managed a paltry 1.12miles or 2,639 steps.  I felt very frustrated, but interestingly – looking at my ‘Step history’ – I walked less than this distance on 10 separate days in February and didn’t feel frustrated about it then. Is this pledge changing my mentality? Already? When I went to bed last night I decided not to set my alarm and to sleep as long as my body needed, which was just over eight and a half hours and I woke far less tired than the previous day.

I texted my friend Pauline (a local amateur photographer) who had planned to go to Gloucester Docks today, to take some photos.  I decided I would walk to meet her and we arranged to walk to the Docks together.  As I left the house, I checked my Fitbit… only to notice the flat-battery symbol! How frustrating.  I grabbed the charger from the car, thinking I could charge it at Pauline’s prior to walking to the Docks.  I was about half-way into my journey when I realised I had picked up the phone charger instead of the Fitbit charger!

Thankfully, my Fitbit didn’t die before I arrived at Pauline’s.  She photographed the ‘miles’ and the ‘steps’ displayed, and from that point we were dependent on her tracker.  After a quick visit to the pharmacy for some blister plasters (I had made the mistake of wearing new trainers and very thin socks) we popped into the closest sports shop for some ‘padded’ socks, which I duly put on, before we continued to the Docks. 

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We detoured to Gloucester Quays Shopping Outlet, where we both bought proper ‘walking shoes’ (I confess that my heels were so sore that I wore my new walking shoes out of the shop!) before moving on to the Docks to take photos. 

Shoes

Arriving back at Pauline’s we noted how far we had walked.  To my surprise, despite the flat battery, my Fitbit was able to display my miles and I already knew how many miles my walk home would be, from walking to Pauline’s from my house in the morning.  To my delight, when I arrived home, my Fitbit managed to display the total miles I had walked today and sync with my iPad!  To say I’m impressed with the performance of my Fitbit is an understatement.

Fitbit

It’s surprising how much you notice when you walk.  I spotted my first honey bee and my first bumble bee, both feasting on fragrant mahonia. In fact, walking through Barnwood Arboretum on the way home, my senses were seduced by the scent of the blossom.  It really is a beautiful time of year and it makes me think just how much I would be missing, if I hadn’t pledged to #MoveMoreInMarch. If you live a sedentary lifestyle, why not try it?

Bee

 

I have been shortlisted for the Nicest Job In Britain and given a challenge…

On the 4th September, I wrote a blog post titled ‘Why I applied for The Nicest Job in Britain. (NJIB)
I had submitted my 60 second application video and used the blog post as part of my #HireSali Campaign, to encourage people to ‘vote’ for me.

I am delighted to share with you that I have been shortlisted for The Nicest Job, which involves working with 40 charities over 12 months. I, and the other 7 shortlisted candidates, have each been allocated a charity to work (drawn from a ‘hat’ containing the aforementioned 40 charities) and have been challenged – to raise as much money and awareness – as possible, for our allocated charity, by 2nd October. I have been given Winston’s Wish, the charity for bereaved children, which is particularly poignant, as I was a bereaved child myself.

Many years ago, I volunteered at the head office of Winston’s Wish, helping with admin and mail-shots. In addition, I assisted with a few of the charity’s promotions in the Regent Arcade, Cheltenham and took my daughters and one of my friends, carol singing – locally – with Winston’s Wish ‘collection buckets’. My perception at the time was that Winston’s Wish was a very well-known, well-supported charity, so when I was tasked by NJIB to ‘raise as much awareness as possible’ of the charity, I wondered what I could do to further awareness of a charity which was already so well-known.

I have always been taught, and in turn have coached others, never to ‘assume’ so I decided to start my challenge with a straw-pole, asking my Facebook friends whether they were aware of Winston’s Wish or not. They just had to comment with a ‘yes’, or a ‘no’. The results surprised me. There was a very clear 50/50 split, with the friends living in and around Gloucestershire answering ‘yes’ and those living further away (although as close as Wiltshire) answering ‘no’. The exceptions were the friends who had used, or knew someone who had used, the services of the charity. The results gave me a lots of scope to ‘raise awareness’.

Did you know that every day, in the UK, more than 100 children are bereaved of a parent? Winston’s Wish has a vision that every bereaved child has access to support as and when they need it and a mission to ensure the resilience of bereaved children by providing high quality services that meet their needs.

Julie Stokes created the charity in 1992. Julie was a clinical psychologist at the time and it was an interaction with the son of a terminally ill patient, which propelled her into investigating how children with a terminally ill parent and bereaved children could be better served. She travelled to the USA and Canada on a Winston Churchill Travelling Fellowship and was so inspired by what she saw, that she returned to the UK and set up Winston’s Wish, which has since become the leading childhood bereavement charity in the UK.

So what is Winston’s Wish and what does the charity do? Winston’s Wish supports children, their families and the professionals who support them following the death of a parent or sibling – the most fundamental loss a child can face. The charity provides professional therapeutic support via a National Helpline, face-to-face support and a website.
Not only does their website offer a wealth of information and guidance, which is divided into helpful categories, and translated into several different languages (Spanish, Bengali, Swedish, Arabic and Polish) but it also offers a ‘Helpline’, which is available on 08452 03 04 05 and operates Monday – Friday, 9am-5pm.

Death comes in many forms, and the Winston’s Wish website offers a range of information and advice on topics such as ‘dealing with serious illness’, ‘talking about death’, ‘bereavement from suicide’, ‘bereavement from homicide’,’ supporting children of military families’ and much more. There is also a specialist area of the website for young people, for professionals and also an online shop with plenty of expert publications and resources for free and for sale.

Winston’s Wish is a national charity, which is reliant on voluntary donations – they need to raise £2.5million every year to continue their support for bereaved children and their families. In 2014/15 these donations equated to 93% of their income. For every £1 they spend, 74p goes on direct delivery. Charities are being scrutinised regarding the cost of fundraising campaigns, but I am pleased to report that for every £1 Winston’s Wish spends on fundraising, they raise £4.47 which is an incredibly impressive return on investment.

I have embraced the challenge to raise funds for this wonderful charity and have set up a Facebook page called A Penny 4 Your Memory, where I am encouraging people to leave a happy or funny memory, which not only makes them smile or laugh, but will do the same for others reading the post. When they leave a memory, they also make a donation to Winston’s Wish via www.givepenny.com/apenny4yourmemory Within 49 hours of being created, the Givepenny page reached the £500 target I had set, so I have amended the target to £750. Please do visit the Facebook page, leave a happy memory, donate and take time to read (and interact) with the memories which have already been posted. Warning… doing so may produce a warm, fuzzy feeling.

And for those of you who might be interested… my interview for The Nicest Job in Britain is on Monday 3rd October. Please wish me luck and please do share this blog post, to help me raise awareness of, and funds for, Winston’s Wish. This is more than just a NJIB challenge to me. Thank you.

Why I applied for The Nicest Job in Britain.

I recently applied for the The Nicest Job In Britain.  As a qualified life and business coach, one of the golden nuggets I frequently pass on to clients is the old adage “if you find a job where you can follow your passion, it won’t feel as if you’re working at all!” I followed my passion around twelve years ago, when I set up a small business helping people and other businesses to set and achieve their goals.  I combined this with my other passion – voluntary work.  Over the years I have managed to get my work/volunteering balance just right… actually perhaps I should clarify that… for half of that time (at least) I have been doing more voluntary work than paid work, because it’s the organisations which need me most (the fledgling charities and ‘good causes’) which can least afford me. Hand on heart, I didn’t mind… because as long as I could pay my mortgage, my bills and feed the family, all was well in my world.  I’m not a materialistic person – I’ll happily buy my clothes in Tesco or Sainsbury’s (preferably in the sales!!) and although I do miss ‘holidays’, there’s nothing that quite matches the feeling you get when you ‘feed your soul’ and helping other people feeds mine.  In fact, I often treat my soul to a lavish banquet!

I first heard of Luke Cameron when the media covered his ‘Good Deed Diary’, early in 2014.  I could immediately relate to what he was doing – I always help others at any and every opportunity. To me, Luke was a kindred spirit. I’m the driver who stops to offer help if someone’s car has broken down, I offer to help carry shopping if I see someone struggling, I’ve helped to pay for people’s shopping and parking charges when they are short of money… it’s what I do. It’s second nature. I’ve always done it and it perpetually perplexes me how so many people will drive past cars that have broken down, or ignore people who are obviously struggling.. 

In August 2014, I messaged Luke through ‘The Good Deed Diary’ Facebook page and asked him whether he would share a blog post about the 2014 Pink Car Rally.  He did…

It was towards the end of 2014 when I next noticed Luke in the media.  He had been appointed as National Philanthropy Manager for Utility Aid, a Midlands-based organisation which aims to help charities reduce their energy spend.  It was deemed to be ‘The Nicest Job in Britain’ and when I read what it entailed, I remember thinking that it was my dream-job and how lucky Luke was to be employed to help charities, and not have to worry about his bills etc.

Fast-forward to August 2016. I was glancing through a newspaper when I saw #TheNicestJobInBritain mentioned. It caught my eye immediately and when I read the article, my heart nearly stopped! Luke was working on a new initiative with The Nicest Job In Britain Creator, Gary Blowers, to recruit a National Philanthropy Manager.  The relaunched role is sponsored by Givergy, an organisation which exists to help charities raise more money at their fundraising events and online which, with its similar ethos to The Nicest Job, made it the idea official partner for 2016/17.

Applicants for the role (you have until 16th September 2016 to apply) are asked to submit a 60 second video application, telling their story and illustrating ‘why’ they should have the nicest job.  In addition, each applicant needs to drum-up support from as many media channels as possible.  Here is my application. Please take 60 seconds to watch it and if you like it, then please use the small icons below it to ‘like’ and ‘share’ it… and please press the all-important VOTE button to vote for me. It literally takes a few seconds – no sign-up is required.  All votes count and you can vote for me once a day, EVERY day if you wish. 

What does the @NicestJob entail? Well the successful applicant will get to work with 40 pre-chosen charities (charities were previously invited to apply to be part of this amazing initiative) over a 12 month period, helping them in whatever way is needed for 4 days and then blogging about the experience.  The charities are located across the UK, so the successful applicant will be given a #NicestJob emblazoned car to drive, in addition to a salary of £30,000pa. 

Why have I applied? I have to say that I want this job so much that it hurts! I feel I have so much to offer; a ‘do more’ attitude, a plethora of skills gained in the both the charity and commercial sectors, I’m a strong communicator who is adept at building relationships, I’m keen and willing to learn new things, I’m confident, I am used to inspiring and motivating others, I’m a people person and a trusted confidant, I have a very kind heart, endless enthusiasm, plenty of passion and a desire to help people.  I refer to myself as a Time Philanthropist and like nothing more than to ‘pay it forward’.  I am also a RAKtavist – part of a group of like-minded people who enjoy performing Random Acts of Kindness. This National Philanthropy Manager role encapsulates who I am – if I was asked to create the perfect job for myself, this is exactly what I would have created. If by reading this blog post you feel I am the right person for the role, then please support my #HireSali campaign by voting for me…. (daily if possible)… and help me to help the following 40 charities in 12 months.  Each of the charities is hyperlinked either to their Facebook page or their website. If there are any on the list that you haven’t heard of before, why not click through to find out what they do?

Sali x

  1. RSPCA (England & Wales)
  2. Joseph’s Hospice
  3. The Lauren Currie Twilight Foundation
  4. Royal Manchester Children’s Hospital Charity
  5. Changing Faces
  6. Children’s Liver Disease Foundation
  7. Shooting Star Chase Children’s Hospice
  8. Creating Better Futures
  9. Music in Hospitals
  10. Meningitis Research Foundation
  11. Mind
  12. Helen Rollason Cancer Charity – HRCC
  13. Henshaws
  14. Churn Project
  15. Rays of Sunshine Children’s Charity
  16. Sport 4 Life UK
  17. The Brain Charity
  18. CHICKS Country Holidays for Inner City Kids
  19. Jubilee Sailing Trust
  20. Mark’s Hospital Foundation
  21. Faith in Water
  22. Teenage Cancer Trust
  23. Samaritans
  24. Toybox
  25. Little Princess Trust
  26. Julia’s House Children’s Hospice
  27. Winston’s Wish – the charity for bereaved children
  28. Theodora Children’s Charity
  29. Friendship at Home
  30. Step up to Serve
  31. Maria Cristina Foundation
  32. vinspired.com
  33. Off The Record (Bristol)
  34. FPA – the sexual health charity
  35. Visyon
  36. Daisy Chain Charity Superstore
  37. Help Appeal – County Air Ambulance Trust
  38. PAFRAS
  39. Gloucestershire Pride
  40. Mary Stephens Hospice

Speaking for those who have no voice!

DREAMS – we all have them…

There are even charities which exist to grant dreams to children and young adults, but I discovered something yesterday which rocked my faith in charities and brought me down to earth with a big bump! It also propelled me to write this post.

First I want you to consider something.  If you have ever had children, think back to the time before they were verbal. Do you remember how you learnt to understand what they needed/wanted? How you, as a parent, were as one with your non-verbal child. Did you ever have people saying your child was hungry, when in fact you knew he/she was simply over-stimulated and needed a nap? No-one understands the needs of a child better than a parent.

Perhaps you have a dog? Dogs are non-verbal, but as a dog owner you learn to communicate with them in a non-verbal way, understanding their needs/wants.

Some children who are born healthy can develop illnesses/diseases which have a profound effect on them.  They may have a normal, happy childhood and then ‘BOOM’ everything changes.  Suddenly they are no longer able to do the things they once did.  Some are robbed of any chance of a ‘normal’ life and exist in a world where they can no longer use their voice to communicate.  Sadly, some children are born with a disease which means they will never be able to talk.

Yesterday I read a Facebook post written by the father of a non-verbal 17 year old, who has a life-limiting disorder and who is on a palliative care pathway.  This father knows that his son loves Disney characters and that a visit to Disneyland would be a dream come true for his son.  His son has not voiced this dream, of course… he has no voice to do so!  The family decided that they would take their son to Disneyland and that they would fund the trip themselves, with the help of a Crowdfunding platform.  Donations are coming in, insurance , accommodation, car hire and flights are sorted.  The family just needs a bit of help with tickets – time is running out.  So the father approached a well-known ‘Wish’ charity to ask for support with the tickets, only to be told that his son needs to express the wish himself! WHAT??? They said what?  They had been told that he can’t communicate and his inability to do so means he can’t be granted a wish! How uncharitable is that?  Another charity which grants wishes ONLY does so to children suffering from life-threatening cancers! WHAT??? I have spent years supporting charities; donating, fundraising, raising awareness, as well as working for some on a consultancy basis and whilst I understand that there has to be set criteria, insisting that a child verbalises their dream is nothing short – in my opinion – of discriminatory.  For a charity only to grant ‘dreams’ to children with cancer is beyond sad.  Mitochondrial disease kills more children than childhood cancer.  It comes in many forms – all life-limiting, some terminal.  No Voices

I spent a few hours yesterday looking at the ‘criteria’ in the small print of several ‘wish giving’ charities, whilst wondering what donors would think of these restrictive policies.  What do YOU think?  If you’re as upset as I am, please share this post and help raise awareness of this poor practice. 

If you would like to support this family, here is Kieran’s GoFundMe page 

Kieran’s father, Paul Preston, created The Children’s Mitochondrial Disease Network (CMDM) in 1998 to support other families, raise awareness and campaign for improved treatment and management of mitochondrial disorders, after the death of his own daughter, Kirsten, in 1992.  She was just 8 weeks old.  Last year, Kirsten and Kieran’s sister, Stacey, died from mitochondrial disease.  She was just 20. She was Paul’s inspiration for twenty years!  This article will tell you more.

I truly believe that Paul Preston and his wife understand their son and know that a visit to Disney would be very special to him. Would it be his verbalised dream, if he could speak? If only he could tell us… because it’s the only way he’ll get support from some of the ‘dream’ charities.

If you would like to know whether Kieran gets to go to Disneyland, please follow Kieran’s Mitochondrial Journey and Wishes Facebook page.

Kieran

 

 

 

Helping those in need – doing what you can, when you can.

A friend of mine shared this link on Facebook today.  I read it and was consumed by sadness for the lovely people of the Welsh Valleys.

I grew up in South Wales. Whilst my childhood was unhappy, I have to say that the love of the Welsh people was second to none.  My family was poor. My father had died when I was young and my mother was a working, single parent.  I understand about not having things, but I always had a school uniform and I always had shoes on my feet.

Perhaps it was my childhood which propelled me into a life of giving; the urge to help others less fortunate than myself.  I love volunteering and have helped many charities and not-for-profit organisations over the years.  Doing something for others brings its own return – the feeling that you have ‘made a difference’ to someone else’s life is beyond compare.  I usually like to do things quietly.  Unnoticed.  Sometimes I have to put myself ‘out-there’ to attract publicity for events I have organised, but most of the time I just quietly get on with things.  If you haven’t considered volunteering, please do.  If you’re unsure where to start, take a look at this link You can pop your postcode in and enter your interests and the distance you are prepared to travel.  Volunteering opens up a whole new world of friendships, new skills and the heart-warming feeling of having ‘given something back’.

I recently had a clothes clear-out.  I am mindful of those people who have nothing; those who sleep on the streets in the bitter cold.  I popped a post on Facebook, asking for suggestions of places to take my ‘worn but warm’ clothes.  I was surprised to see just one suggestion – I thought there would be at least a dozen! A friend messaged me to say that she works with vulnerable people, who would be delighted to receive my clothes and she is going to collect them.  But it did make me wonder – do people know ‘where’ to take their unwanted clothing and shoes, so that they can help people like those in the Welsh Valleys?  My children have grown up now, but many of you will have children who out-grow their shoes faster than they can wear them out.  What do you do with their out-grown shoes? 

I dream of winning the lottery and using the money to help others who are struggling. In the meantime, I will continue to do what I can, when I can.  I hope you do the same.